Tag Archives: london

Positive Affirmation Card Reading 15th Oct – 22st Oct

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So I haven’t done a positive affirmation #reading for all of us in a long time!!! So I shuffled my #miriclesnow cards and asked them for guidance this week!!

The card I picked reads: 

‘In The Midst Of A Meltdown, I BREATH Through The Discomfort And Come Out The Other Side’ 

✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨

Anytime you feel any pressure or stress it’s always good to pause for a minute and take some long deep breaths in and out! When everything gets too much mentally, physically or both our minds and bodies react and we go into panic mode! The simplest things become a task and we then start to have a ‘meltdown’ we start to suffer… But taking a few minutes to ground yourself and breath will really help!! Try and refocus while letting all the tension come out of you! The situation your in wont change but how you deal and process it definitely will! Also take a few minutes to do something physically to clear your mind like having a cup of tea or read a few pages of your favourite book… ❤️💜💛💚💙 So remember this week just pause and take deep breathes when things overwhelm you and come out stronger on the other side! 

Peace and love xxx

Instagram Giveaway Winners 😊

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#Congratulations to @haleleaa !!!! You have won the #animalkingdom #adultcolouringbook!! I will also include colouring pencils to get you started 😊 Direct Message me your address and full name please xxxx #chronicillness #chronicfatigue #hypermobility #pots #fibromyalgia #findingmyrange #asthma #spoonie #eds #ehlersdanlossyndrome

 
Congratulations @vonniijayy!!! I decided to pick two winners!! You have won the #iheartcolouring book with lovely illustrations by @flissfrench88!! It’s small enough to fit in you handbag!! Hope you enjoy it xxx direct message your full name and postal address please 😊 thanks to everyone that took partxxx day!! #chronicillness #chronicfatigue #hypermobility #pots #fibromyalgia #findingmyrange #asthma #spoonie #eds #ehlersdanlossyndrome

Instagram Giveaway

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THREE MORE DAYS LEFT!! I’m giving away the animalkingdom Adult  colouringbook!!! It’s soo pretty! It’s a worldwide giveaway. 🎊🎊🎊🎊🎊🎊🎊All you have to do to enter is follow me on Instagram: @findingmyrange, repost my post and tag #fmrgift by the end of Sunday the 7th June!! 🎊🎊🎊🎊Will pick a winner on Monday 😊 good luck xxx

Disabled Revolution  Anyone? 

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It was a long night and day yesterday in the UK with some of us waking up to the horrid news that David Cameron, leader of the Conservative party will be our priminister again for the second term and what’s worse is that there is no coalition this time so it’s pure Tories!! As a young disabled woman living in central London this is really hard news to digest.. I have seen and experienced how much suffering sick and disabled people have gone through in the past 5 years and as a young person I have seen all the services that were helping me live a supported and progressive life vanish before my eyes… We have been treated like the lowest of low for being sick and not being ‘able’ to work! We are living in a country where people automatically believe sick/disabled people are just a drain to society  or we are all lazy and just want to live on benifits! How are we MENT to work without support or suitable jobs! 

  
I have been on benefits for maybe 7 years now.. I have never had a ‘real’ job as My illness progressed when I was 16. I would love to work but with my health conditions there is nothing out there right now that I can physically do or earn enough from. Saying all of that I don’t believe that I’m getting money from the government for not doing anything! I am a positive member of society that works as a person for the community! I volunteer as much as I  can to local charity’s, I speak to and help as many  people as I can about issues they are having! I educate people on my illnesses and disabilities, I am always there for my friends and family and most of all I am there for disabled/sick people! So many disabled/sick people really help and support each other! I think that’s the biggest ‘job’ of all! We shouldn’t be named unemployed benefit receivers  we should be called ‘undercover heros’ or ‘expert advisor to the people’ lol no one with an ‘official’ job can do the work we do to support and educate each other! I honestly think if we didn’t communicate with others or just sat in a dark room quiet it would be a very horrible and a hard world out there! We are the experts and I think its about time we get recognised for it!! We need a disabled revolution! We need to stop all this bull shit thinking others have of us! We are not benefit scroungers, we are not useless but WE ARE the soldiers that show everyone that you can do anything you put your mind to! WE ARE the fire that burns through all the bullshit and WE ARE some of the most important and influential people in society!  

  
I know it can be hard to stay positive but we need to! Even with the government we have today we are  still lucky to live in a country where  people do support us and we are lucky to have free health care and financial help! Allot of countries don’t have this! So we do need to praise the good while recognising the bad but don’t let the government make us disabled! We are amazing people with soo much knowledge and power! So I say fuck all the nagetivity and bullshit and join together to show everyone what we are made of and why we are key to the running of this country!!! We will stick together and rise together and do anything in our power to stop any injustice thrown our way! The next five years are gong to be very interesting! So lets continue to be open and out there! Fight for what you believe in and continue to reach out to everyone you can! We are the force for change and equality! We are the soldiers and most importantly we are the PEOPLE! 

So let your voice out in any way you can and fight for what’s right!!! 

  
  
PEACE & LOVE XXX


Other posts that you should check out 

How to get disabled tickets of you need them 

Chronic illness Flare up plan 

FESTIVALS & CONCERTS for VIPs (disabled tickets) 

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It’s 2am in west london. I am wide awake like a true Insomniac and i’m not feeling sleepy AT ALL!!  But I am feeling over Excited!!! It’s finally starting to snow outside and 

At 9am Wireless festival 2015 tickets go on sale!!!! 

It’s London’s 3 day urban music festival like no other!! I’m a huge hiphiop/r&b fan so this festival gets me very excited!!!! As the months go by they will be adding loads more artists to the bill!! Here’s the line up so far!!! And a link to their website  http://www.wirelessfestival.co.uk



I think i was 16 when I first got interested in concerts & music festivals properly. I had been to local music events at places like the Notting Hill Carnival, Portobello Market and at the Tabernacle (a local community center at the time). I had also been on music chart shows like ‘Top Of The Pops’ and ‘CD:UK’ any one remember these tv shows? 

That was all before my EDS and other chronic conditions took over!  It was also at my worst point health wise at 16 and a half years old. I never dreamed let alone thought I could go for events like this back then!!! It wasn’t till 2013 that I decided to research going to a concert because ‘Queen B, Mrs Carter, Sasha Fierce BEYONCE‘ was coming to London!!! And it was for one of my favourite albums of all time!!!  



So at the age of 24 I was finally brave enough to take control of my conditions and fight for what I wanted!! 

She was playing at the O2 arena North Greenwich!! I am an O2 customer so I got priority to buy tickets before general sale! So I singed up with AXS the ticket provider website and sat on my computer From 8.30 am waiting in a virtual room to be let into the site for 9am! I was soo excited yet soo nervous!! My plan was to buy two tickets to see Beyonce! One for my Carer and one for me.. 9am came and just like magic purchasing options became available!! I have never done this before soo it was all new! I added my two tickets into my basket but every time I tried to checkout it would say something like ‘There are no tickets to purchase’!!! 

Aghhhhhh What Am I Doing Wrong! Thats me screaming down the phone to my friend lol 

After 30 minutes of trying, we start to see the social media sites blow up with status updates announcing: BEYONCE PRE SALE SELLS OUT IN UNDER TEN MINUTES!!

I was soo upset! It took allot of courage to get me to this point and I couldn’t get a ticket!! 

After my mini breakdown I realised I had been upset over Presale and the rest of the tickets will be on sale the next day!!!! 

Ohhhh everything changed in me!  I was no longer trying to sit at a computer patiently to get tickets.. I now knew I was going in to a battle!! As I did more research into making sure I got a ticket, I stumbled across a button with information for people with Access Needs!!! I wouldn’t have clicked on it if I didn’t recognise the familiar blue wheelchair user logo! 

I had just found the Magic Button for all thoes living with disabilites!!! As I read through I found out that most venues provide special seating for people with disabilities and that your carer will be allowed in free of charge!! Then I found something even more magical!!! O2’s DISABLED BOOKING LINE!!!! An 0208 number that will solve all my questions while providing me with a the most appropriate seating for me to watch the concert!!! I didnt waste any time and rang that number straight away! I know they said pre sale had sold out but at least I can talk to somone about my best options for getting tickets the next day!! I spoke to somone from the accessible booking team and explained its my first concert and I suffer from this and that. The lady I spoke to was very nice and the first thing she said was we still have one more disabled ticket on Presale, would you like to purchase it? I paused is disbelief.. I then said I need two tickets as I need a carer! She then explained that most events allow a carer for free when needed and that the ticket she offered me included a carers ticket!!! 

I was over the moon!!!  I then paid for the ticket so fast!! I had finally purchased  a concert ticket and realised how easy it is to deal with when its at big venues!!! 

So that was my first experience! And I have loads more to tell but I need to try and get some sleep…. This post has taken me an hour :-/ 

A detailed page about disabled acsess tickets can now be viewed here 🙂 

Night 

Peace and love xxx

 

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Finding My ‘Range’

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Helloooo to anyone who finds this page! 

I’m new to all of this and thought I would give it a go!! My CBT counseller told me the best way to deal with the million and one things running around in your head is to write it down! So I tried to keep a diary but because im dislexic and have a short attention span i gave up on that idea pretty quick 😳 but let’s face the main fact here!  I love using my phone and I love using the Internet so this seems allot more promising!!! 😄

My name is Steph, I’m 26 and live in West London, UK… I am a volunteer film maker and also a face painter… There are a hundred things I could tell you about my self right now but I think it’s best to let things roll out naturally and it will give me something to write about later on…. 

I Suffer from a few health conditions… The main one is  called Ehlers Danlos Sydnrome type 3 (eds), it is also refered to as Hypermobility Syndrome (HMS)… I have had this since I was born but i was only diagnosed at 16/17… I also suffer with Postural Tachycardia Syndrome (POTs) since I was little but was only diagnosed at 21

I basically suffer from allot  of pain due to unstable joints throughout my body!! I dislocate and sprain my joints nearly everyday… And it also causes a number of other health issues that are not related to my joints but are connected to having this condition!! I know it’s abit confusing lol 😝 here’s a link if you would like to learn more: www.ehlers-danlos.org

Having hypermobile joints mean I’m very flexible and bendy!!  For some this has allot of benefits and they can live without any pain and dislocations… But for people with my specific condition it’s a completely different story!!! and the main thing the doctors seem to say is to learn to keep your joints at a ‘Normal Range‘ 

Iv learnt over the years that the ‘Normal Range‘ is something that you have to work out on your own because every ‘body‘ is different! And you also have to find your ‘Normal Range‘ of your soul/spirit!!! We are not just a body we are people and that means finding what is ‘Normal’ to YOU! 

My blog will probably be very random and will be about anything that I feel I want to write about which will include what I go through and how I deal with it!!! IT being health concerns to a lipstick I really like or a random song that pops up in my head 😄

So join me on my journy in

               ‘Finding My Range’


Peace & Love xxx

Ps, please forgive my spelling mistakes I have tried my best to correct as many as I can 🙂 



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