Finding My ‘Range’

Helloooo to anyone who finds this page! 

I’m new to all of this and thought I would give it a go!! My CBT counseller told me the best way to deal with the million and one things running around in your head is to write it down! So I tried to keep a diary but because im dislexic and have a short attention span i gave up on that idea pretty quick 😳 but let’s face the main fact here!  I love using my phone and I love using the Internet so this seems allot more promising!!! 😄

My name is Steph, I’m 26 and live in West London, UK… I am a volunteer film maker and also a face painter… There are a hundred things I could tell you about my self right now but I think it’s best to let things roll out naturally and it will give me something to write about later on…. 

I Suffer from a few health conditions… The main one is  called Ehlers Danlos Sydnrome type 3 (eds), it is also refered to as Hypermobility Syndrome (HMS)… I have had this since I was born but i was only diagnosed at 16/17… I also suffer with Postural Tachycardia Syndrome (POTs) since I was little but was only diagnosed at 21

I basically suffer from allot  of pain due to unstable joints throughout my body!! I dislocate and sprain my joints nearly everyday… And it also causes a number of other health issues that are not related to my joints but are connected to having this condition!! I know it’s abit confusing lol 😝 here’s a link if you would like to learn more: www.ehlers-danlos.org

Having hypermobile joints mean I’m very flexible and bendy!!  For some this has allot of benefits and they can live without any pain and dislocations… But for people with my specific condition it’s a completely different story!!! and the main thing the doctors seem to say is to learn to keep your joints at a ‘Normal Range‘ 

Iv learnt over the years that the ‘Normal Range‘ is something that you have to work out on your own because every ‘body‘ is different! And you also have to find your ‘Normal Range‘ of your soul/spirit!!! We are not just a body we are people and that means finding what is ‘Normal’ to YOU

My blog will probably be very random and will be about anything that I feel I want to write about which will include what I go through and how I deal with it!!! IT being health concerns to a lipstick I really like or a random song that pops up in my head 😄

So join me on my journy in

               ‘Finding My Range’


Peace & Love xxx

Ps, please forgive my spelling mistakes I have tried my best to correct as many as I can 🙂 



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6 thoughts on “Finding My ‘Range’

  1. I too have hypermobile joints but not eds. I had no idea until my rheumatology consultant told me when I was 31. I’m 56 this year and like you have a number of conditions including Rheumatoid Arthritis. I love the blog

    Liked by 1 person

    • Nice to meet you 🙂 thank you for reading my blog… Im glad you like it! Rheumatoid arthritis must be very painful! My doctor suspects I may be getting it on my toes… You must have loads of things we can talk about! Keep in touch also have a look at my entry about swimming it may help you!

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  2. There’s no better therapy then expressing yourself, be it verbally or written! So beautiful to read and through reading it I can see your strength! Absolutely perfect! Keep it up its good for you but imagine how many other people you will help through your blog! You have been such an amazing inspiration to me and I truly appreciate you for sharing all you have with me! Looking forward to your next post! Oh and forgive me for any of my spell or grammar mistakes 🙈

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    • Awww ZANIHANNE!!! I nearly cried thank you so much for your kind words!! You are an amazing lady and a wonderful mum!! Iv learnt allot from you ESP your ability to keep positive!!! So glad we got in touch again really God brought us together after so many years! Thank you again your support means the world to me xxx

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